The Professional and Public Policy Committee (PPPC)

Recommendations on the following topics are available in the European Journal of  Human Genetics

  1. Genetic testing in asymptomatic minors: recommendations of the European Society of Human Genetics.
    European Journal of Human Genetics advance online publication 11 March 2009; doi: 10.1038/ejhg.2009.26 - More
     
  2. Borry P, Evers-Kiebooms G, Cornel MC, Clarke A, Dierickx K. Genetic testing in asymptomatic minors.
    European Journal of Human Genetics     advance online publication, 11 March 2009; doi:10.1038/ejhg.2009.25. - More
     
  3. Provision of genetic services in Europe: current practices and issues - More
     
  4. Population genetic screening programmes: technical, social and ethical issues - More
     
  5. Data storage and DNA banking for biomedical research: technical, social and ethical issues - More
     
  6. Genetic information and testing in insurance and employment: technical, social and ethical issues - More
     
  7. The need for interaction between assisted reproduction technology and genetics (Recommendations) - More
     
  8. The interface between assisted reproductive technologies and genetics: technical, social, ethical and legal issues (Background Document) - More
     

Draft Background Documents

  1. Draft Background Document on “PATENTING AND LICENSING IN GENETIC TESTING - Ethical, Legal and Social Issues" - More  
     
  2. Polymorphic sequence variants in medicine: Technical, social, legal and ethical issues Pharmacogenetics as an example (Draft Background Document) - More

 

ESHG response to the European Parliament Report on the ethical, legal, economic and social implications of human genetics.

The papers produced by the PPPC were submitted for comments, then endorsement, to the members of the International  Federation of Human Genetics Societies.

Some of the documents are available as pdf file (for which you will require a copy of Acrobat Reader, available free)

 
Members of the PPPC 2008-2009
  3-year term ends Term
Anne Cambon-Thomsen (Toulouse, France) 2011 1st
Martina Cornel (Amsterdam, The Netherlands) Chair 2011 2nd
Thoas Fioretos (Lund, Sweden) 2011 1st
Francesca Forzano (Genova, Italy) 2011 1st
Shirley Hodgson (London, UK) 2010 2nd
Gyorgy Kosztolanyi (Pecs, Hungary) 2009 3rd
Jan Lubinski (Szczecin, Poland) 2010 1st
Christine Patch (London, UK) 2010 1st
Jorge Sequeiros (Porto, Portugal) 2011 3rd
Aad Tibben (Leiden, The Netherlands) 2011 1st
Lisbeth Tranebjaerg (Tromso, Norway)  2009 4th
Veronica van Heyningen (London, UK) 2009 2nd

The President, Vice-President and President-Elect are ex-officio members.

The PPPC was established at the ESHG 1997 annual meeting.   The PPPC built up the program of the public awareness session of the Society's conferences  in 1999  and 2000 in agreement with the Scientific Program Committee. The program was first discussed with Genzyme (Sponsor) and representatives of the European Alliance of Genetic Support Groups. 

Updated May 21, 2009

Copyright © European Society of Human Genetics 1998-2009