Recommendations on the following topics are available in the European Journal of Human Genetics
- Provision of genetic services in Europe: current practices and issues
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More
- Population genetic screening programmes:
technical, social and ethical issues -
More
- Data storage and DNA banking for
biomedical research: technical, social and ethical issues -
More
- Genetic information and testing in insurance and employment: technical,
social and ethical issues -
More
- The need for interaction between assisted
reproduction technology and genetics (Recommendations) -
More
- The interface between assisted reproductive
technologies and genetics: technical, social, ethical and legal issues
(Background Document) -
More
Draft Background Documents
- Draft Background Document on “PATENTING AND
LICENSING IN GENETIC TESTING - Ethical, Legal and Social Issues" -
More
- Polymorphic sequence variants in medicine: Technical, social, legal and ethical issues Pharmacogenetics as an example (Draft Background Document) - More
ESHG response to the European Parliament Report on the ethical, legal, economic and social implications of human genetics.
The papers produced by the PPPC were submitted for comments, then endorsement, to the members of the International Federation of Human Genetics Societies.
Some of the documents are available as pdf file (for which you will require a copy of Acrobat Reader, available
free)
| Ségolčne Aymé | (Paris, France) |
| Suzanne Braga | (Bern, Switzerland) |
| Franca Dagna Bricarelli | (Genova, Italy) |
| Martina Cornel | (Amsterdam, The Netherlands) Chair |
| Gerry Evers-Kiebooms | (Leuven, Belgium) |
| Shirley Hodgson | (London, UK) |
| Gyorgy Kosztolanyi | (Pecs, Hungary) |
| Ulf Kristoffersson | (Lund, Sweden) |
| Jan Lubinksi | (Szczecin, Poland) |
| Meral Özgüc | (Ankara, Turkey) |
| Christine Patch | (London, UK) |
| Jorge Sequeiros | (Porto, Portugal) |
| Lisbeth Tranebjaerg | (Tromso, Norway) |
| Veronica van Heyningen | (London, UK) |
The President, Vice-President and President-Elect are ex-officio members.
The PPPC was established at the ESHG 1997 annual meeting. The PPPC built up the program of the public awareness session of the Society's conferences in 1999 and 2000 in agreement with the Scientific Program Committee. The program was first discussed with Genzyme (Sponsor) and representatives of the European Alliance of Genetic Support Groups.
