Documents
 
ESHG or ESHG endorsed Documents

Recommendations for Patenting and licensing in genetic testing: ethical, legal and social issues - new

  • The European Society of Human Genetics (ESHG) wants to involve the genetics community in the analysis of, and the discussions on, the practical, political, societal, ethical and economical aspects of patenting and licensing of genes, sequences and genetic tests. More
     

Recommendations for genetic counselling related to genetic testing - new

  • Eurogentest has prepared Recommendations for genetic counselling related to genetic testing. The recommendations were written by Eurogentest Unit 3 partners and experts, circulated for comments and endorsement among ESHG membership and European National Human Genetic Societies and finally sent to ESHG Board for endorsement. The recommendations can also be found on the Eurogentest website.
     

Core competences in genetics for health professionals in Europe - update

Recommendations on the following topics are available in the European Journal of  Human Genetics

  1. Patenting and licensing in genetic testing: ethical, legal and social issues
    More - new
     
  2. Provision of genetic services in Europe: current practices and issues - More
     
  3. Population genetic screening programmes: technical, social and ethical issues - More
     
  4. Data storage and DNA banking for biomedical research: technical, social and ethical issues - More
     
  5. Genetic information and testing in insurance and employment: technical, social and ethical issues - More
     
  6. The need for interaction between assisted reproduction technology and genetics (Recommendations) - More
     
  7. The interface between assisted reproductive technologies and genetics: technical, social, ethical and legal issues (Background Document) - More
     

Draft Background Documents

  1. Polymorphic sequence variants in medicine: Technical, social, legal and ethical issues Pharmacogenetics as an example (Draft Background Document) - More

ESHG response to the European Parliament Report on the ethical, legal, economic and social implications of human genetics.

 

 
Received Documents

The following documents were not officially endorsed by the ESHG, but are put on the ESHG website as a service to the human genetics community. Comments are welcome

  • OECD has launched public consultation on the draft Guidelines for Human Biobanks and Genetic Research Databases Deadline for comments: May 16, 2008

    The OECD has been working on developing Guidelines for Human Biobanks and Genetic Research Databases (HBGRDs). The draft Guidelines are intended to assist both OECD member countries and non-OECD economies in the development of policies applicable to HBGRDs.

    These draft Guidelines offer principles and best practices for and are targeted at all those involved in the establishment, governance, management and use of human biobanks and genetic research databases. They aim to provide guidance on legal, administrative, financial, institutional and social aspects.

    Now public consultations concerning the draft Guidelines have been launched. The public consultations will run until May 16, 2008. The text of the draft Guidelines is accessible on the OECD web site. Comments may be submitted also via email at: hbgrd.guidelines@oecd.org
     

  • Guidelines for Clinical Protocols in Genetic Research Recommendations for the Creation and Assessment of Clinical Research Protocols in Genetics

 

Updated April 30, 2008

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