The European Society
of Human Genetics

Calls for collaboration

Calls for collaboration

Survey on the Legal framework for genetic testing in the EU by the EORTC

Currently, there is a lot of variation in national legislation for genetic testing and a lack of oversight of the applicable instruments. This complicates genetic research as well as knowing how to deal with the results for instance in the case of incidental findings or whether genetic counseling is mandatory.

In order to create an overview of national instruments and professional codes or guidelines we would like to distribute a survey among relevant people (i.e. people performing genetic tests and/or people aware of the legal environment).

The link to the survey is: https://eortc.wufoo.com/forms/mr71yqm1sehl74/