Information primarily for patients and lay users
Understanding Genetic Disorders - Educational material proposed by the University College Dublin.
A patient's guide to Next Generation Sequencing: This leaflet gives patients information about genetic tests that target many different genes at once. The information may help you to decide whether or not to have the test and help you to understand the results.
EGAN - European Genetic Alliances' Network is working for a voice in research and health policy and seeks a world in which genetic diseases are understood, effectively treated, prevented and the people affected supported, and is an alliance of national genetic alliances and European disease specific patient groups with a special interest in genetics, genomics and biotechnology.
Genetic Alliance UK (formerly Genetic Interest Group) an umbrella group of Patient Support Groups
UK Contact a Family Allows families with genetic disorders to contact others
Genetic Alliance (US) formerly the Alliance of Genetic Support Groups
Alopecia Areata Online Support Group a community of patients, family members and friends dedicated to dealing with Alopecia Areata.
Your Genes, Your Choices: Exploring the Issues Raised by Genetic Research - describes the Human Genome Project, the science behind it, and the ethical, legal, and social issues that it raises. Recommended.